This blog is for my super great family and to give you all updates on our girls!
Sunday, January 24, 2010
Is it Possible?
Somehow my latest post dissapeared...It was long but I can not get it back. I will repost when I get some time soon. Here is a video of Maddie's eyes again. Shows that both eyes now go outward...
The TS doc said he thought it was a seizure. She had a 3rd eeg and did this durring the eeg. It was completly normal...Not a seizure. Whatever it is, it has been getting worse since October. They said tonic upgaze but they still don't know. We are giving the eye patch an effort to at least line her eye when she looks up. It works for about 20 seconds. Then she just tilts her head and looks out of the corner of her eye while it is outward. It is driving me nuts and clearly her too. I am hoping it is extreeme sensory issues but I do not know.
Ooh. Sweet baby girl is trying to hard to focus. They do not believe that this any kind of seizure activity?
ReplyDeleteI meant to say SO hard to focus. That'll remind to proof read!
ReplyDeleteThe TS doc said he thought it was a seizure. She had a 3rd eeg and did this durring the eeg. It was completly normal...Not a seizure. Whatever it is, it has been getting worse since October. They said tonic upgaze but they still don't know. We are giving the eye patch an effort to at least line her eye when she looks up. It works for about 20 seconds. Then she just tilts her head and looks out of the corner of her eye while it is outward. It is driving me nuts and clearly her too. I am hoping it is extreeme sensory issues but I do not know.
ReplyDelete